TÉCUM: A New Transition Program for Young People With Epilepsy.
Ya Ning Zhao, Laury-Anne Blondeau, Rose-Marie Drouin-Engler, Line Beaudet, Melissa Côté, Jennifer Damiani, Dominic Chartrand, Vanessa Léger, Dang K Nguyen, Philippe Major, Mark Robert Keezer
Abstract
Open AccessBackground: The transition from pediatric to adult health care for people with epilepsy is a critical period that requires careful planning to ensure optimal patient well-being. Adolescents with epilepsy face health-related and social challenges (e.g., psychiatric disorders, treatment nonadherence, family planning, and medico-legal issues). Recent Findings: The TÉCUM (Transition en Épilepsie Complexe de l'Université de Montréal) program aims to establish a sustainable model of transition care. Key initiatives include patient-oriented symposia (covering medical and social topics), a website that is a hub for available public and community resources, and a standardized online questionnaire to assess patient psychosocial well-being and transition readiness to tailor interventions. Implications for Practice: Our innovative program has established new educational initiatives for patients and their families and measures to ensure optimal management of their epilepsy as well as their psychosocial needs. We anticipate that the TÉCUM program will positively influence adolescents and young adults with epilepsy across Canada.