BMC health services research
From the rare to the essential: analyzing the needs of physicians and families managing rare diseases.
Irene Mussio, Patricia Triunfo, Mariana Gerstenblüth, Víctor Raggio, Patricia Cardozo, Hugo Naya, Lucia Spangenberg
Published: 202610.1186/s12913-025-13999-6
Abstract
BACKGROUND: This study aims to identify the social and healthcare needs of patients with rare diseases (RD) and their physicians within a Universal Health Care System. It seeks to provide valuable insights for policymakers, patient organizations, and…
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