Journal of child health care : for professionals working with children in the hospital and community
"It Doesn't Have to Be Big Things": The legacy perceptions of parents/caregivers of medically complex children.
Maile T Jones, Karen Romer, Emily D Irwin, Kayla Black, Leslie Rhodes, Jessika C Boles
Published: 202510.1177/13674935251400902
Abstract
Advancements in life-sustaining technologies have extended the lives of children with medical complexities, increasing demand for substantial healthcare services. Caring for these children requires significant caregiver time and energy, affecting the…
Preview only. Read the full abstract at the source