Amyotrophic lateral sclerosis & frontotemporal degeneration
A study of patient recall and comprehension of genetic testing results in amyotrophic lateral sclerosis (ALS).
Jewel Tomlinson, Emily Roberson, Victoria Klee, Jianing Ma, Jennifer Roggenbuck
Published: 202510.1080/21678421.2025.2582829
Abstract
Objective: Assess the accuracy of ALS patient recall of genetic testing results and evaluate comprehension of key implications of results. Methods: Participants were recruited from the Center for Disease Control's National ALS Registry. A survey coll…
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