Ophthalmic geneticsHumansQuality of LifeRetinitis PigmentosaSocial MediaCost of Illness
Social media-derived patient perspectives on the burden of inherited retinal diseases, including retinitis pigmentosa.
Cho-Han Lee, Rebecca Crawford, Sheila Hickson-Curran, Divya Narayanan, Lynda Doward, Sumeet Panjabi, Dejan Milentijevic
Published: 202610.1080/13816810.2025.2576793
Abstract
BACKGROUND: Retinitis pigmentosa (RP) and many other inherited retinal diseases (IRDs) cause progressive retinal degeneration and eventual blindness, significantly impacting patients' health-related quality of life (HRQoL). Social media (SM) can prov…
Preview only. Read the full abstract at the source