Journal of clinical epidemiologyRare DiseasesHumansQualitative ResearchPractice Guidelines as TopicInterviews as Topic
A qualitative study among guideline developers revealed challenges and strategies for rare disease guideline development.
Mirthe J Klein Haneveld, Willemijn F E Irvine, Martina C Cornel, Federico Germini, Miranda W Langendam, Holger J Schünemann, Johanna H Van der Lee, Agnies M Van Eeghen, Charlotte M W Gaasterland
Published: 202610.1016/j.jclinepi.2025.112045
Abstract
OBJECTIVES: Clinical practice guideline (CPG) development for rare diseases is challenging due to scarce evidence, small expert groups, limited resources, and heterogeneity and complexity of conditions. Critical appraisals of existing rare disease CP…
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