Genetics in medicine : official journal of the American College of Medical GeneticsHumansGenomicsBiomedical ResearchAccess to InformationGenome
Toward ethical provenance tracking: The GA4GH model data access agreement (DAA).
Alexander Bernier, Bartha Maria Knoppers, Jonathan Lawson, Robyn McDougall, Maili Raven-Adams, Vasiliki Rahimzadeh
Published: 202610.1016/j.gim.2025.101594
Abstract
PURPOSE: Standardizing contractual clauses that govern data access enables research institutions to responsibly steward genomic and related health data while enabling its efficient downstream reuse. METHODS: We describe a document analysis study usin…
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