AMA journal of ethicsHumansInformed ConsentRare DiseasesBiomedical ResearchUnited States
Is the UDN N-of-1 Enterprise Ethically Justifiable?
Gianna Gordon, Lisa Kearns
Published: 202510.1001/amajethics.2025.737
Abstract
The Undiagnosed Diseases Network is a national consortium of clinicians and researchers working to promote diagnostic research and accurately diagnose patients with rare diseases, many of whose conditions have long gone undiagnosed. This endeavor's i…
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