AMA journal of ethicsHumansInformed ConsentResearch SubjectsHuman ExperimentationBiomedical Research
What Are Ethical Merits and Drawbacks of Viewing "Medical Mysteries" as Human Subject Research?
Tom A Doyle, Erin Conboy
Published: 202510.1001/amajethics.2025.718
Abstract
Patient-subjects' participation in an Undiagnosed Diseases Network (UDN) protocol can afford access to innovative diagnostic techniques, especially in genomic medicine, which can shorten the time it takes to accurately diagnose a so-called "medical m…
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